Thursday, May 12, 2011

5/12/11 And this is why we DON"T ask...whats next??????

Ok, chemo number 4....done!! whoo hoo - 2 more to go - then some surgery and we hope for the best!!! Well, chemo #4 threw me for a loop.
Had a party to go to on Friday after my Thursday chemo - had a very nice time - I was tired but made it through!! Saturday - not so good!!! Woke up - tired - don't think I moved from the couch!! Ok - I can handle that - Sunday Mothers Day!! Very nice day - got eggs, sausage and english muffins - on the couch - after I slept in and stayed - on the couch - the kids and Greg were great - totally let me rest....So I continued to rest because getting up and walking to the bathroom was like RUNNING a mile  - and for me (on a good day) is ALOT!!!! So I rested!
Tuesday - same - but worse can't catch my breath - for anything - called the doctor and went in at 1:00pm at which time I was told I need to go to the EMERGENCY ROOM - my heart is not functioning properly and this is a problem!!!!!!
So - yeah - whats next - DO NOT ASK THAT QUESTION!!!!!!  EVER!!!!!!!!!!!!!!!!!!
So I sit in the ER with Greg and my Kathy Mac - who by the way has not just been a wonderful hospital advocate but an awesome friend to us!! Thanks Kath!!
So I call my mom - come down - then I call her back - Greg told me to - Don't come down, at this point we didn't know if I was being admitted or just looked over and tested on - so I sit in the ER. Kathy goes home and so does Greg - I was not happy to see them go but needed to feel like I could sleep if I wanted to!! Oh but - I was in the ER in NYACK - not much sleeping gets got there!!!! The stories I could tell but this is my story not those of people I don't know!!! BUT WOW!!!! I thought I had issues - whoooo hoooo!!!
So I get to go home - but not before a few tests - chest x-ray - EKG and a CT scan - such fun!!! Oh and a phone call to Nancy Mc. in case I have to stay will she bring me McD's cuz - I haven't eaten all day!!! Of course she said yes but I held her off cuz I was going home!! Thanks Nancy!!!!!
So - I go home with a report of wonderful health at 10:30pm - I still have cancer but all else is good except I still need an echocardiagram!!
I go to the cardiologist the next day!! And they forget about me in the office!! Apparently - new patients who remain quiet are left alone to rest - lmao!!
So I get up and open the door - and lo and behold I hear - Um....she's still in there?!?!?!? Meanwhile - Sammy is still at school and I wanted to be on my way home BY 5:30 - its now 5:20!!!
Doctor comes in and tells me schedule "echo" for tomorrow - meaning today - Thursday - so I do!!!
Guess what!!! All is good - I guess!!! According to the cardiologist my heart is working a little slower than when I first started chemo but that is to be expected and all looks fine - basically - suck it up - put your big girl panties back on and stop your whining!!!! Now - I have seen my oncologist and been told - "YOU NEED TO REST MORE" I've been resting for 5 days - so possibly disability for me, i said I would discuss it with her next week - not sure I wanna do that but If she insists I guess I don't have a choice!! Magine the tan I could have!!!!
So, here I am - a week after chemo and still short of breath - although better - tired and just plain - NOT ME!!! I just - oh wait - I forgot - I need a brain MRI - my parents said they aren't gonna find ANYTHING!!! LMAO - very funny parental units!!!!
So, as I was saying - I just want me back- I know its just the beginning - and I have a long road ahead of me but really - I am tired and want to feel like doing stuff - I want to have some energy and have fun without stopping to breath!!!
Sorry for complaining but I need to vent and this seems to help relax me a bit!! THANKS for reading!!
Keep the prayers coming!! Thanks

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